Caregiver burnout and coping strategies in family-centered care: A challenge for palliative care nurses
DOI:
https://doi.org/10.70577/4c4yxx54Keywords:
Caregiver burden, Strategies, Coping, Family breakdown, Palliative care.Abstract
Objective: To determine caregivers’ emotional burden in relation to family claudication processes using specific assessment instruments. Materials and methods: A quantitative, descriptive, and prospective study was conducted, with a non-experimental, cross-sectional design, involving primary caregivers of patients receiving palliative care. A sociodemographic form, the Zarit Caregiver Burden Interview, and the Brief COPE were applied; data were processed using descriptive statistics and the chi-square test. Results: Female sex, caregivers aged 61 years or older, primary education level, and married marital status predominated. According to the Zarit scale, most caregivers did not present burden, although mild and intense burden were identified, with intense burden occurring only among women. In the Brief COPE, moderate problem-focused and emotion-focused coping predominated, whereas avoidant coping remained between low and moderate levels. No statistically significant association was found between caregiver burden and coping dimensions. Conclusions: Caregivers present a low overall level of burden; however, there is a vulnerable group that requires nursing support, psycho-emotional assistance, and strengthening of adaptive coping strategies to prevent family claudication.
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Balcázar-Hernández, L., Huerta-Martínez, H., Garrido, E., Nishimura-Meguro, E., Jiménez, A., & Rivera-Hernández, A. (2023). Burden in primary informal caregivers of children and adolescents with type 1 diabetes: Is it associated with depression, family dysfunction, and glycemic control? Frontiers in Endocrinology, 13, 1089160. https://doi.org/10.3389/fendo.2022.1089160 DOI: https://doi.org/10.3389/fendo.2022.1089160
Barba, L., & Shugulí, C. (2022). Niveles de sobrecarga en cuidadores del adulto mayor con y sin deterioro cognitivo: Estudio comparado. Revista Eugenio Espejo, 16(2), 67–80. https://doi.org/10.37135/ee.04.14.08 DOI: https://doi.org/10.37135/ee.04.14.08
Benson, J., Washington, K., Landon, O., Chakurian, D., Demiris, G., & Parker, D. (2023). When family life contributes to cancer caregiver burden in palliative care. Journal of Family Nursing, 29(3), 275–287. https://doi.org/10.1177/10748407231167545 DOI: https://doi.org/10.1177/10748407231167545
Cuevas-Martínez, K., & Gutiérrez-Valverde, J. (2022). Caracterización de los cuidadores informales de adultos mayores en situación de pandemia por COVID-19 en Tamaulipas, México. Sanus, 7, e265. https://doi.org/10.36789/revsanus.vi1.265 DOI: https://doi.org/10.36789/revsanus.vi1.265
Duangjina, T., Jeamjitvibool, T., Park, C., Raszewski, R., Gruss, V., & Fritschi, C. (2023). Gender differences in caregiver burden among family caregivers of persons with dementia: A systematic review. Innovation in Aging, 7(Suppl. 1), 419–420. https://doi.org/10.1093/geroni/igad104.1386 DOI: https://doi.org/10.1093/geroni/igad104.1386
Estrella, V. (2025). Perfil sociodemográfico y sobrecarga del cuidador de pacientes oncológicos atendidos en una unidad de cuidados paliativos. Revista InveCom, 6(3), 1–9. https://doi.org/10.5281/zenodo.17834980
Eze, N., Ezeugwu, C., Eze, R., Soronnadi, C., Orji, C., & Chime, O. (2025). Caregiving burden and coping strategies among informal caregivers of cancer patients in Nigeria: From duty to distress. International Journal of Public Health, 70, 1607735. https://doi.org/10.3389/ijph.2025.1607735 DOI: https://doi.org/10.3389/ijph.2025.1607735
Fernández, N. (2023). El riesgo del síndrome del cuidador y cómo reconocerlo. Tu Canal de Salud. https://www.tucanaldesalud.com/es/voz-especialista/riesgo-sindrome-cuidador-reconocer-lo
Grumeth, A., Rothenhäusler, H., Mörkl, S., Wagner-Skacel, J., & Sciri, E. (2025). Correction: Biopsychosocial impact of high levels of trait anxiety on family caregivers in the end-of-life palliative care setting. PLOS ONE, 20(4), e0322896. https://doi.org/10.1371/journal.pone.0322896 DOI: https://doi.org/10.1371/journal.pone.0322896
Gualan, J., & Carrión, C. (2024). Sobrecarga en cuidadores de personas adultas mayores de la parroquia Cumbaratza del primer semestre 2024. Revista Científica y Arbitrada de Ciencias Sociales y Trabajo Social, 7(16), 289–305. https://dialnet.unirioja.es/servlet/articulo?codigo=10253494 DOI: https://doi.org/10.56124/tj.v7i15ep.019
Hauché, R., Chiaramonte, A., Gago, L., & Dran, G. (2025). Sobrecarga, calidad de vida y estrategias de afrontamiento en cuidadores primarios de pacientes crónicos. Revista Iberoamericana ConCiencia, 10(1), 42–60. https://doi.org/10.70298/ConCiencia.10-1.5 DOI: https://doi.org/10.70298/ConCiencia.10-1.5
Hernández, C., Muñoz, S., & Sánchez, R. (2024). Factores relacionados con sobrecarga del cuidador informal de pacientes con cáncer avanzado. Avances en Enfermería, 42(1), e106557. https://doi.org/10.15446/av.enferm.v42n1.106557 DOI: https://doi.org/10.15446/av.enferm.v42n1.106557
Ju, W., Jiang, H., Ma, S., Han, B., Zhang, S., Cong, M., & Wei, W. (2025). Socioeconomic disparities in caregiver burden among families of older patients with cancer. JAMA Health Forum, 6(12), e255614. https://doi.org/10.1001/jamahealthforum.2025.5614 DOI: https://doi.org/10.1001/jamahealthforum.2025.5614
Kim, B., Hwang, I., & Ahn, H. (2025). Family relationships and caregiver burden among family caregivers of patients with terminal cancer. BMC Palliative Care, 24, 207. https://doi.org/10.1186/s12904-025-01855-7 DOI: https://doi.org/10.1186/s12904-025-01855-7
Li, M., Tachaudomdach, C., & Srirat, C. (2025). Coping and burden among caregivers of patients with cognitive impairment, Yunnan Province, the People's Republic of China. Nursing Journal CMU, 52(3), 45–62. https://he02.tci-thaijo.org/index.php/cmunursing/article/view/268456
Long, D., Gu, Y., & Wang, Y. (2025). Sense of coherence and caregiver burden among informal caregivers of people with dementia in China: The mediating role of coping strategies. Psychology Research and Behavior Management, 18, 1423–1433. https://doi.org/10.2147/PRBM.S518799 DOI: https://doi.org/10.2147/PRBM.S518799
Murayama, L., Filho, P., Winckler, F., Meirelles, H., Mello, N., Moreira, B., & Sampaio, R. (2024). Caregiver burden, hopelessness, and anxiety: Association between sociodemographic and clinical profiles of patients with stroke. Journal of Stroke and Cerebrovascular Diseases, 33(11), 107905. https://doi.org/10.1016/j.jstrokecerebrovasdis.2024.107905 DOI: https://doi.org/10.1016/j.jstrokecerebrovasdis.2024.107905
Organización Mundial de la Salud. (2020). Cuidados paliativos. https://www.who.int/es/news-room/fact-sheets/detail/palliative-care
Organización Panamericana de la Salud. (2023). Cuidados paliativos. https://www.paho.org/es/temas/cuidados-paliativos
Palacios-Galvez, M., Garcia-Navarro, E., José, H., Giusti, M., Raulinajtys-Grzybeck, M., Sousa, L., et al. (2025). Factors that influence the burden of the caregiver of cardiovascular patients: A multicenter study. BMC Public Health, 25, 4098. https://doi.org/10.1186/s12889-025-25074-0 DOI: https://doi.org/10.1186/s12889-025-25074-0
Rooeintan, M., Haghighi, S., & Ahmadi, M. (2023). Caregiver burden and quality of life among caregivers of cancer patients in Ahvaz, 2021–2022: A cross-sectional study. Journal of Chronic Diseases Care, 12(4), e138098. https://doi.org/10.5812/jjcdc-138098 DOI: https://doi.org/10.5812/jjcdc-138098
Santos, D., Ardah, H., & Searya, A. (2025). Burden of informal caregivers from an HHC Military Hospital in Riyadh, Saudi Arabia: A cross-sectional study. International Journal of Environmental Research and Public Health, 22(2), 313. https://doi.org/10.3390/ijerph22020313 DOI: https://doi.org/10.3390/ijerph22020313
Sharma, G., Sharma, M., Mohan, R., Khera, D., & Raghu, V. (2023). A cross-sectional study to assess the anxiety and coping mechanism among primary caregivers of children admitted in PICU. Journal of Family Medicine and Primary Care, 12(9), 2042–2046. https://doi.org/10.4103/jfmpc.jfmpc_675_23 DOI: https://doi.org/10.4103/jfmpc.jfmpc_675_23
Shefeek, S., Teena, M., Olickal, J., Abdulnazer, M., George, A., & Raman, K. (2024). Caregiver burden and quality of life in palliative care: Cross-sectional study. BMJ Supportive & Palliative Care. https://doi.org/10.1136/spcare-2024-005220 DOI: https://doi.org/10.1136/spcare-2024-005220
Shumet, S., & Zeleke, E. (2026). Exploring the lived experiences and coping strategies of mental health caregivers in Ethiopia: Implications for supportive interventions. International Journal of Mental Health Systems, 20, 8. https://doi.org/10.1186/s13033-026-00696-y DOI: https://doi.org/10.1186/s13033-026-00696-y
Silva, F., Silva, J., Partezani, R., & Pecchi, M. (2021). Caregiver overload and factors associated with care provided to patients under palliative care. Investigación y Educación en Enfermería, 39(1), e10. https://doi.org/10.17533/udea.iee.v39n1e10 DOI: https://doi.org/10.17533/udea.iee.v39n1e10
Woodrell, C., Mitra, A., & Hamilton, A. (2021). Burden, quality of life, and palliative care for family caregivers of individuals with advanced liver disease: A systematic literature review. Current Hepatology Reports, 20(1), 198–212. https://doi.org/10.1007/s11901-021-00575-9 DOI: https://doi.org/10.1007/s11901-021-00575-9
Zhang, Y., Zhang, S., Liu, C., Chen, X., & Ding, Y. (2023). Caregiver burden among family caregivers of patients with advanced cancer in a palliative context: A mixed-method study. Journal of Clinical Nursing, 32(21–22), 7751–7764. https://doi.org/10.1111/jocn.16872 DOI: https://doi.org/10.1111/jocn.16872
Zhu, W., Li, J., & Fan, C. (2025). Caregiver burden of cancer patients undergoing palliative PTBD: An investigation of patient and caregiver factors. BMC Palliative Care, 24, 131. https://doi.org/10.1186/s12904-025-01760-z DOI: https://doi.org/10.1186/s12904-025-01760-z
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Copyright (c) 2026 Ashley Julady Rambay Giler, Steven Jahir Durán Moreno, Anita Maggie Sotomayor Preciado (Autor/a)
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